Sunday, August 22, 2010
Moon Dough!
Check it out at http://www.moondough.com/
I will update more about school soon. Maybe later today. We will see!
Friday, October 02, 2009
PixOs are Gluten Free
Tuesday, September 08, 2009
Thane's First Day of Kindergarten
Taking his waffle on the road to finish on the way to school, and checking out his schedule for the day.
Being greeted in front of school by the resource room teacher. She greets him every day and guides him to his classroom.
Posing closer to the door.
Showing his schedule to the teacher.
Heading inside for his first day of Kindergarten.
At the end of the day, he was rewarded with this certificate.
Sunday, January 04, 2009
Choked Up Over Grilled Cheese
I wonder if he thinks his family is totally off the wall when we celebrate things like that? We all were so proud of him, especially when he asked for another bite. And he ate more than half, probably close to three-quarters.
He does have a new trick up his sleeve for when he is asked to eat new foods, though. He pushes his belly out to make it look bloated, and then announces that he can't eat it because it will make him sick.
Wednesday, October 29, 2008
Diet Blues
I saw these nice looking new gluten-free crackers and I really wanted to get some for him to try. The reviews were all wonderful, so it sounded so promising. I had searched them first on Amazon, but Amazon has stopped listing full ingredients. I had to check one of the gluten-free sites and found that it contained eggs. I told Dave it really made me want to try Thane on eggs again because avoiding gluten and eggs is harder than gluten alone, but the last time he had egg he was in so much pain. Plus now isn’t the time . . . the child hasn’t had a solid bowel movement in awhile. I know that is too much information for some, but anyone who has a child on a special diet, a child with stomach trouble, celiac disease, or anything like that can understand that this becomes worrisome.
He still seems to be growing fine – he is moving into size 5 just before turning 5 years old, so that seems pretty typical (especially in a family where mom is only 5’1”!). But we did buy the slimmest looking “regular” jeans we could find, and still need to crank down the adjustable waist by 6-8 button holes . . . and they still are loose. I am trying to decide whether we should try slims, but he just doesn’t really look like a slim build to me. I’m probably being silly.
Friday, May 30, 2008
Gluten-Free School Supplies
There are several school/preschool items that may contain gluten. Some people don't worry as gluten is a large protein and might not be absorbed through the skin, but it isn't known for sure. We deal with both celiac and a wheat allergy, so we try to avoid touching it. I am in the process of making up a list for Thane's new school, so I was going through websites for various companies and double-checking, plus there are a bunch that I have already contacted (the stickers being a biggie since Thane loves stickers).
Chalk, Crayons, Markers, and Pencils
Crayola (all products gluten free other than Crayola Dough)
Crayola Crayons (all kinds)
Crayola Anti-dust Chalk Sticks
Crayola Erasable Colored Pencils
Crayola Fabric Markers
Crayola Markers (all kinds)
Crayola Pencils (all kinds)
Crayola Pip-Squeaks
Crayola Pip-Squeaks Skinnies Markers
Crayola Washable Markers (all kinds)
Prang (all pencils, crayons)
RoseArt
RoseArt Crayons (all kinds)
RoseArt Chalk
RoseArt Markers (all kinds)
Sanford / Mr. Sketch Scented Markers
Sanford / Mr. Sketch Watercolor Markers
Dough and Modeling Clay:
Colorations Wheat & Gluten-Free Dough (Discount School Supply)
Crayola Model Magic (clay – not the dough!)
Prang
Silly Putty
Note: Play Doh, Crayola, RoseArt Fun Dough, Ross and Amoco Super Dough are NOT gluten free! RoseArt modeling clay is NOT gluten free.
Glue and Paste
Crayola Glitter Glue
Elmer all products other than Finger Paint are gluten free.
Ross all products other than Finger Paint are gluten free.
Ross Glitter Glue
Ross White Glue
Ross Glue Sticks
Ross School Glue
Blick's Mix Instant Papier Maché
Note: Avoid traditional paste as it has wheat/gluten.
Grains and Pasta for Art & Sensory
Beans – kidney, navy, white, etc.
Lentils
Peas, black-eyed peas
Sunflower Seeds
Rice, white or brown
Note: Avoid oats, barley, rye, wheat berries, or using bird seed.
Corn
Pasta (elbows, etc.), DeBola, OrgraN
Rice Pasta (white and brown), Tinkyada, OrgraN
Note: Pretty much all pasta that is not specifically rice, corn, or other non-gluten grain will contain wheat flour and not be safe.
Paint:
Crayola all paints including finger paint are gluten free.
Dick Blick Tempera
Lakeshore Liquid Tempera and Washable Finger Paints
Palmer Paint Products (all paints)
Palmer Nature' Hues
Palmer Liquid Tempera (contains corn starch)
Palmer Washable Liquid Tempura
Palmer Face Paint
Palmer Glitter Paint
Prang (all paints)
Prism
Brand Acrylic Glow in the Dark
Prism Regular Acrylics
Prism Model Paints
Prism Pearls
Prismatone Tempera
Ross (all other than finger paints)
Sargent Art Paints
Note: Elmer's and Ross finger paints is NOT gluten free.
Sands:
Delta Sand (Discount School Supply)
Moon Sand
Soaps & Personal Care Items:
Band-Aid Bandages (all kinds, including character, clear, flexible, etc)
Cascade Dishwasher Soap
Gluten-Free Savonnerie (all)
Purell hand sanitizer
Softsoap (all kinds)
Stickers:
RoseArt
Sandylion brand is gluten free
Smile Makers brand (Staples and Smile Makers online)
Tape:
3M Brand (tapes/office products do not contain gluten, nor casein)
Post-It Notes
Scotch Magic Tape
In general, any art or office supplies that have adhesive should be considered to contain gluten unless one finds out otherwise from the company, so no licking envelopes, no stickers adhered skin unless they are on the list above, etc. Always err on the side of caution.
For those concerned about soy exposure, Prang and Dixon/Ticonderoga both have soy crayons that are labeled as such. Christel King has passed along that all the Color Wonder products, all the Crayola colored pencils, the washable markers, all Palmer products, the oil paints, contain soy.
Saturday, April 12, 2008
Checking New Schools
That's what the school I visited Wednesday smelled like.It’s the kind of smell that gives you a headache that stays with you all day.
The people all seemed nice, and there was lots of space, nice outside area, and plenty of staff for the number of children. But the whole scene seemed like sensory overload for Thane – he is one of those little guys who gets really excited and happy, but has a hard time organizing himself and coming down again once he is over-excited.
In some ways I feel too picky, but it also seems like it would be hard to keep him from being glutened. There was art with glutenous pasta, dog biscuits, cat treats, etc. I worry that not only would he have trouble settling down and focusing in the environment, but that it would be really hard to keep him safe. Also knowing that they did mitigation for mold and having that vile odor is worrisome for any child, not just one who with so many allergies and sensitivities. As it is, he wasn't in school for a full week between mid-November and mid-March because of illness, and this is with a staff that has kept him away from his known allergens - how much would he have missed without that?
I called the other school I need to visit to reschedule – I’ll be going next Friday since Braeden is off school and I don’t have to drive the opposite way. I am thinking I am not going to get away without having to drive two directions next year.
Thursday, February 21, 2008
ABA and Lunch
There are many things that simply have not been worth the fight to me . . . meaning that I haven't really wanted to push him to the point of unhappiness about any behavior. That doesn't mean I don't react to him throwing toys or something (the toys get a time out away from him until he is calm), or that I think every minute of his life will be shear happiness, but I don't want to create conflict where there doesn't need to be any. Who cares if he doesn't wear clothing at home? Who cares if he lines up his cars? It's all about picking battles . . .
I also completely understand that there is no such thing as a perfect parent. We do the best thing we can think of at the moment, hind-sight makes us question our choices, and how we react in the future evolves from what has worked and what hasn't.
Thane had gotten very difficult about eating meals, or eating much variety. It wouldn't matter much to me if his choices were pretty well-rounded, and if he didn't expect to eat half grapes and stick them to the furniture. He can eat a half grape if he puts the rest in a discard bowl, but the floor and furniture was just too icky. We want him to try new foods. I know this hardly seems like a crime, but he is 4 years and 2 months and has never even let a piece of pasta into his mouth. I am sure he would like it with some toppings that he enjoys, like tomato sauce, but he won't let it past his lips.
We gave the ABA guy a try because we were getting nowhere with potty training. Then he basically got the concept in a day, no pee accidents within a week, off the timer in less than a week, etc. So it worked. The first day was awful, then it turned easy.
So we decided to address the wanting Thane to eat at the table and actually finish a meal rather than eat two grapes and cry for more food in a half hour. We wanted him to eat more foods and not always be a separate meal. I wanted him to try some of the products of our efforts to make some pretty darn tasty gluten free, egg free foods (he does have dairy and some soy again). We have allergies to work around too.
The therapist suggested first a plan for eating at the table, finishing the food on his plate (which Dave is really uncomfortable with since both of us parents have a weight problem and Braeden is gaining too fast). This plan has taken as much as 5-6 hours a day to implement. It got easier for a bit, but then fell apart because of parental failure. We were sick of it!
We tried again and we had lunch with the therapist on Wednesday. It was horrible. He didn't think so, but I really felt like I was torturing my son to get him to eat a bite of waffle. I had to physically keep him in his chair. I didn't do anything that would hurt him physically; in fact, I was doing all I could to prevent him from hurting himself. I found myself thinking that maybe I should just let him live on waffles, apples, grapes and cheese after all. Maybe he doesn't need to sit with us or finish a meal on anyone else's schedule. But how will that work if he goes to school? Gets a job? And we do have the added complication that he really cannot have gluten. Gluten damages the insides. It makes him very sick for the short term, clumsy, he has trouble speaking, etc. He does need to have some guidance around food issues.
I was told I did well. I stayed calm. OK, maybe on the outside, but inside I was yelling I want to stop. NOW! So where does one go with this. Physically he is OK. Emotionally he still loves mom and hangs out with me (the webcam videos were a few hours after our ordeal). I don't want to do this anymore, even if yesterday was totally rare. It still happened and it was more than I can handle. I felt so mean. I love my kids to pieces and I know I have to correct them here and there, but this is different to me somehow. Like I am turning something small into a battle.
I'm glad he and I had so much fun later on (and Braeden too, he was laughing really hard while watching Thane watch the videos, because he says "Hi!" to them constantly). I hope I don't have any more days that make me doubt my decision to try this therapy. It's hard because eating a meal is not punishment (and a meal can be one bite) to most of us, but I guess Thane disagrees.
Monday, December 31, 2007
Thane's 4!
The big surprise for our family was that Thane decided to join us at the table and frost his own cake. I have some shaky video of his first lick of frosting, and the way he cringed and said “No way!” when we asked if it was good. I thought he might lose it, but he is gaining so much control of hi s gag reflex.

He really enjoyed blowing out the candles. In fact, we had to light them a couple of times so he could do it more than once.



He also enjoyed opening his presents. The biggest hit was the Pat Pat Rocket that Karen and Wayne managed to get for us while they were in stock at a Target in Biddeford. Of course, it is easy for me to say it was worth the effort because I didn’t do the work! Seriously, though, Thane really loves it and Karen tested it for lead before she mailed it. If you look at the picture, which also shows one of his new horses, he is actually moving a character up the stairs into Rocket. It may not seem like much, but it actually shows something pretty major a little guy on the autism spectrum!

My biggest laugh comes from my warped sense of humor. Dave didn’t put S’Mores together beforehand, so check him out screwing in the batteries. This wins for my obscene toy photo of the year. When Braeden was in Montessori, we were doing a 4th of July Parade and Dave was inflating Uncle Sam. The air inlet was . . . guess where?

And, in case that photo of Dave wasn’t silly enough, check him and Braeden (and Dora) out wearing mini Bilibos.

Last is a not so great photograph of Thane’s cake at his birthday party. The back story on the cake is that I finished baking it and let it cool on a rack – first getting a nice grid pattern in the top of one half of the cake. I figured that would be the bottom. I put the cake on a pan and started frosting it. It seemed to be going well until I put the top layer on. As I was frosting it I realized that it was really rather lopsided. I am not sure how it happened, but I was grumbling in my mind about my ugly cake. Thane walks in and in his charming and very breathy way said, “Wow! It’s perfect!”
After I started writing on it, Braeden decided he wanted to come in and help. His initial idea was to use white to make a symbol that it wasn’t for children under three. He decided instead to go around it. Thane came in and decided he wanted to do the red. In fact, he wanted to use all the red. I figured I should let it all go . . . besides, who would notice the fact that the cake is lopsided when it had kid graffiti all over it?!? They were happy! And everyone enjoyed eating it . . . other than Thane.

Another amazing thing to see is that the boy next to Thane with the blower is six months older. At one point he was close to six inches taller than Thane and 15 pounds heavier. Nothing makes it more obvious that Thane is no longer Failure to Thrive than seeing him next to a peer! He sure has changed a lot in so many ways!
All right, I have one more. The dog just looks cute under the tree.
Saturday, November 24, 2007
Potty Learning
We met the behavior analyst on November 15th. He suggested we use a timer and have Thane use the potty every 20 minutes. If he didn't go at 20, then try again in 10, and then at 5 minute intervals until he went or had an accident. We were supposed to show disappointment if he messed himself, and cheer on successes and give a reward (we chose gluten-free gummy worms and bears). He did very well through the morning, but got angry about the process in the afternoon and had some bowel accidents. As luck would have it, he was having some issues with his bowels, which sure didn't help us any. But on day two he had no accidents and we could move to a 30, 15, 7.5, then 5 minutes schedule. Bowels were the only thing holding him back from stretching the schedule further until Thursday.
I was getting worried about him running to the potty every time an alarm sounded as it was obvious from day one that the timer was a big influence. He ran and left the table when it went off in the middle of dinner. He was also going in between timers whenever he needed, so it seemed like he understood the concept.
Mid-day Thursday, before all the Thansgiving timers went off, we stopped using his timer and let him self-regulate. No problems that day or Friday. Today we had one accident related to bowel trouble, so again I feel like that is really to be expected given his celiac disease and general tummy issues.
I have to say that Thane continues to amaze us. He has made so many changes and come so far one would hardly know he is the same child. This went so smoothly after the first day, when I was hormonally compromised and shouldn't have chosen that day to start anyway!
My favorite quote for the week is that I said, “Thane, you’re beautiful.” He replied, “Yes, I beautiful. And I big!”
Sunday, August 05, 2007
Conversation, Reading
"Faney's? [hand on chest] Faney have some?”
“No, I'm sorry, these are mine,” Braeden replied
“Not for Faney. Bwaeden's. Tings? I love Tings!”
Braeden washed his hands and went and got a bag of Tings for Thane.
On the reading, we bought some Band-Aids last night as we no longer had bandages in the house. I threw out a lot of them when I couldn't confirm whether or not that had gluten. Anyway, he came to me with a newly purchased box that I got specifically for Braeden (so not really worrying about the gluten issue) and Thane asked, “Band-Aid?” as if he wanted to know what it was. I find this kind of thing fascinating.